We got Peanut's diagnosis of Prader-Willi Syndrome. We were devastated, but yet the grace of God was so over-whelming at the same time. I'd like to share a journal entry I wrote the day after we heard the diagnosis.
March 9, 2006
Today I am thankful. I'm thankful that Phillip was premature, because now he is getting therapy to strengthen his muscles and to help him to suck six weeks before he was even supposed to be born. I'm thankful he was in the NICU instead of the newborn nursery because the doctors and nurses had the experience to know there was something wrong with him besides being premature. I'm thankful that the doctors' trusted their instincts and ordered the tests even though they though they thought they would be negative. I'm thankful that Phillip was diagnosed at 2 1/2 weeks because now we have so much more time to prepare for the struggles ahead of us. I am thankful for the incredible support we have already received from our church. I am thankful for the enormous grace that God has given me today, because I have no idea how I am able to be thankful. Our God is so mighty and powerful, and yet he knows my name. He knows Phillip's name and has known him and loved him from the foundation of the earth. It is an honor to be able to worship such a marvelous God.